In a pain crisis? Call the SCMA Helpline: 1-888-286-0078
Sickle Cell
Medical
Advocacy
TRANSFORMATIVE and QUALITY healthcare for patients with Sickle Cell disease.Whether you need a navigator today or want to train to become one, SCMA meets you where you are.
Founded 2021 · Patient-led nonprofit ·Headquarter, Orlando, FL
—
Nobody should
fight for care
during a pain
crisis.
SCMA trains certified Sickle Cell Healthcare Navigators who stand beside patients — virtually, in real time — through every ER visit and hospital stay, backed by national treatment guidelines.
LIVE CASE SUMMARY
Avg. response time
20 min
Active hospital cases
49
Hours of Operation
Mon to Fri
9am to 9pm EST
Sat and Sun
12pm to 7p EST
Navigator on call
How it works
—
From first call to discharge — you're not alone.
01
Request
Patients or caregivers complete a registration form.
02
Match
A certified navigator is assigned to your case within the hour.
03
Advocacy
A navigator and a provider from SCMA call your hospital to share NHLBI/ASH guidelines and discuss treatment with your care team.
04
Remain
We stay engaged with you for the full hospital stay, not just the first hour.
Community Voices
—
What patients and navigators say
"As a nurse, it was not enough to know the definition of Sickle Cell disease to understand the disorder. This course has increased my awareness of the need for advocacy of Sickle Cell warriors."
" I enjoyed learning and understanding the importance of level of care needed for patients with
sickle cell disease. There was so much to learn. I can't wait to advocate for patients."
"I feel like I was given the keys to how to ease the pain and support the health of sickle cell warriors. I also feel like I have a lot to learn over the next year to begin using those keys to unlock the doors to compassionate care for actual patients in crisis."
130+
300+
Navigators
Certified
Total Patient Support
100+
21,000+
Hospitals Reached
Advocacy Hours
Thank you for your sponsorships — Pfizer, Agios, Chiesi and MTS Foundation