Welcome to SCMA!
At SCMA we envision a world where every patient and provider understand the importance of culturally competent care for people with Sickle Cell, where all patients diagnosed with sickle cell disease survive their illness and age with dignity.
Sickle Cell Medical Advocacy Inc. serves a resilient community that is facing significant barriers to healthcare. We know this because a staggering percentage of healthcare providers in Primary care, Hematology, Emergency Room medicine and Hospitalist care, admit to sub-standard or negligent care of patients with Sickle Cell disease. We've heard from our community that patients are even turned away in vaso-occlusive crisis and uncontrolled pain because providers are uncomfortable or unfamiliar with managing pain in an acute crisis.
At Sickle Cell Medical Advocacy (SCMA), a certified medical advocate trained using Medical Advocacy Training Program©, virtually accompanies a patient with Sickle Cell disease into the hospital/ER during an acute pain crisis and stays in contact with the patient during hospitalization until discharge. The advocate provides updated national guidelines and other resources for Sickle Cell crisis management to all the patient’s healthcare providers at every point of care.