We know the statistics. Sickle Cell disease is the world’s most common genetics blood disorder! It affects millions around the world with ancestral ties to sub-Saharan Africa, in the Spanish-speaking regions like Central and South America, and the Caribbean.
Here in the United States about 100,000 people have sickle cell disease. 1 in 13 African-American babies are born with the trait and one in 365 African American babies have sickle cell disease.
1 in 16,300 Latin babies are also born with Sickle Cell disease. African-Americans comprised of 98% of Sickle Cell disease cases in the United States.
Unknown to many, people living with Sickle Cell disease can also be found in Saudi Arabia, India and Mediterranean countries such as Turkey, Greece, and Italy.(1)
Most healthcare providers are aware that Sickle Cell disease, with all the variations of hemoglobin genotypes (2), is symptomatic to varying degrees with patients often needing medical attention. Many are quite unaware that over the years, more research has shown that the Sickle trait itself can be quite symptomatic causing patients to need medical care as well (3,4). For this reason, here at SCMA, we extend our tent to cover those who have Sickle trait and who may need medical intervention as well.