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 Sickle Cell Medical Advocacy (SCMA) stands as a 501(c)3 non-profit organization, initiated by
sickle cell patients and caregivers with a primary goal of dismantling the barriers that obstruct effective
emergency room (ER) and hospital care for patients with sickle cell disease (SCD). SCMA was cofounded in 2021
by Simone Eastman Uwan MD, a retired physician living with SCD and a teaching authority in the SCD community, along with her caregiver and husband, Mr. Aniekan Uwan.

SCMA is the only nonprofit organization to take a nationwide approach to medical advocacy for patients with sickle cell disease, with curriculum-based advocacy training. Our unique approach to healthcare navigation trains
volunteers nationwide and pairs them with SCD patients to improve patient healthcare outcomes in real
time. The organization has trained 60+ health navigators located across 21 states so far and has served
300+ SCD patients to date, with over 8,500 hours volunteered through our programs, courses, and support
groups in the last year alone.

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SCMA also has a robust curriculum for sickle cell disease patient education, which focuses on self-advocacy. We also provide sessions on disease management and mental health support for patients.

Please see the “What We Do” section for a summary of our comprehensive services.