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Partnerships

Link to partner's website: https://www.sicklecelldisease.org/

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The B Strong Group

The B Strong Group is a 501 (c)(3) nonprofit organization founded in 2017. Our mission is to spread awareness of sickle cell disease within our community through education, advocacy, and empowerment. One of our main initiatives is to share the importance of blood donation. The organization is headed by Brenda Green who is the Founder and Chief Executive Officer. The organization offers many services of significance, advocacy, and awareness.

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The Foundation For Sickle Cell Disease Research

Foundation for Sickle Cell Disease Research (FSCDR)

Is a 501 (c)(3) nonprofit organization founded in 2012. FSCDR is committed to supporting innovative research in Sickle Cell Disease to help maximize quality of life and improve survival for the generations of people affected with this disease.

 

 The organization is headed by Dr. Lanetta Bronté-Hall who is the Chief Executive Officer. The organization offers many services of significance, including Sickle Cell disease research with clinical trials and outpatient infusion centers providing acute pain management to Sickle Cell disease patients in acute crisis.

 

For patients needing hospitalization, FSCDR will partner with SCMA to provide inpatient healthcare navigation, and provide information to patients about our programs. SCMA will refer patients for all outpatient services that FSCDR provides.

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Dr. Gerald C. Igboanusi, Ed.D., LMHP, LPC, NCC
Founder and President ProSightful Counseling and Consulting
Dr. Gerald C. Igboanusi, Ed.D., LMHP, LPC, NCC is the Founder and President ProSightful Counseling and Consulting - a Non-Profit Charity organization that provides online mental health services to underserved clients in the United States and around the world where poverty or stigma limits access to services. “Dr. Gerald”, also known as "Dr. G." is a veteran pastor of 15 years and was a high school teacher for six years. An Army veteran and staff officer of nearly eight years. He is stationed at Fort Jackson, South Carolina, providing spiritual and mental health services to Active Duty soldiers and their families. 

Dr. Igboanusi completed his undergraduate studies at Saint Norbert College in Wisconsin. He graduated with a Master of Divinity and Sacred Scriptures from Mount Angel Seminary, Oregon. He obtained a Master of Science in Counselor Education and a Doctor of Education focusing on college mental health at Creighton University, in Omaha, Nebraska. Upon graduation, Dr. Gerald was hired by his Alma matter, Creighton University and teaches exclusively in the Graduate School, School Counseling and Preventive Mental Health Program as an Adjunct Assistant Professor.

Dr. Igboanusi is a Licensed Mental Health Practitioner (LMHP) in Nebraska, a Nationally Certified Counselor (NCC), and a certified Military Family Life Counselor. Currently, he is the Director of Therapy for ProSightful Counseling and Consulting. His specialties include Trauma, depression, anxiety, PTSD, Grief and loss, Vicarious Trauma, Suicide prevention, Marriage and relationship issues, Spirituality issues. He is passionate about diversity and equity issues. He has been working diligently in providing access to quality and culture-specific mental health to minorities, immigrants, and refugees. Dr. Gerald has joined forces with Dr. Simone Uwan to provide compassionate, holistic, culturally responsive, and affordable mental health services to the SCMA community.
For more information about Dr. Gerald and his program, please visit:
http://www.prosightful.org
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The Levi Long Sickle Cell Association

The Levi Long Sickle Cell Association, established as a 501(c)(3) nonprofit organization in 2018, primarily focuses on Sickle Cell education and awareness. Led by CEO and Founder Keiana Long Hargrett, the organization's mission is to AIME: Aware, Inspire, Motivate, and Educate individuals living with Sickle Cell in their respective communities.

 

The organization provides valuable services aimed at educating and raising awareness among individuals affected by Sickle Cell, empowering them to become advocates for their own health.

 https://www.facebook.com/LeviLongSickleCellFoundation

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On The Air Sickled

“On The Air Sickled” is a nonprofit organization founded In 2023. We focused on publically sharing information, personal stories, testimonies, and experiences of members of the Sickle Cell community. The organization is headed by Chardonée Donald, who is the President and Otmar Donald is the Executive Director. The mission of this organization is “Airing the good, the bad, and the ugly in the name of awareness and advocacy.”

The organization offers many services of significance:

 

a) the Sickle Cell community talk freely about their experiences related to the treatment and management of their Sickle Cell Disease. 

 

b) Bring awareness to the greater community of the rare disease, Sickle Cell Anemia Disease.

 

c) Financial support through the “Flip The Bill Program”-where members of the Sickle Cell community struggling to maintain financial stability receive donated funds to cover medical expenses, food, etc. 

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The Riley Foundation for Sickle Cell Disease is a 501 (c)(3) nonprofit organization 2019. We mainly focused on bringing awareness to sickle cell disease and trait. We focus on the individuals entire being,  metal, physical and emotional.The organization is headed by Shauna Riley who is the executive director. The mission of this organization is to educate, advocate and support those affected by sickle cell disease. The organization offers many services of significance, advocacy and awareness.

The Riley Foundation
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Shanavia’s Dream Sickle Cell Clinic

Shanavia’s Dream Sickle Cell Clinic is a 501 (c)(3) nonprofit organization in South Carolina. Shanavia’s Dream Sickle Cell Clinic is a non-profit organization created to assist those with the disease in small/rural communities. The goals of the organization include assistance with pain management, childcare while receiving treatment, transportation, and accessing resources not directly offered by the clinic. The organization is headed by Keosha Garrett who is the President. The mission of this organization is, ''In the fight to win the fight against Sickle Cell".

The organization offers many services of significance, including but not limited to providing transportation, donating blood, providing childcare, and offering referrals for services we do not offer for warriors and their families.  

https://www.facebook.com/profile.php?id=61556244263606&mibextid=LQQJ4d

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Sickle Cell Awareness 365

Sickle Cell Awareness 365 is a 501 (c)(3) nonprofit organization established in 2017 in Georgia. The mission of Sickle Cell Awareness 365 is to bridge the gap between the Sickle Cell community and the community it depends on by advancing the universal knowledge of Sickle Cell disease and traits through advocacy and education. Sickle Cell Awareness 365 focuses on helping

teens, teen parents, and young adults transition from pediatric care to adult care and overall wellness. We want to combat the high mortality of our young men and women by empowering them to take ownership of their health, create preventative and maintenance plans for themselves, and live limitlessly despite Sickle Cell disease. The organization is headed by Mia Robinson, who is the President.

https://www.sca365inc.org

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Voices of Winged Warriors

Voices of Winged Warriors (VoWW) unites the advocacy of caregivers and allies who have lost loved ones to sickle cell disease. VoWW aims to radically improve emergency care, mitigate ongoing SCD complications through better healthcare access and maintenance treatment, educate medical associations, shift policy and legislation through advocacy, and create and impact other changes that transform the landscape of living with sickle cell. We vow to help individuals with sickle cell live life to the fullest.

 

Voices of Winged Warriors is a Michigan nonprofit organization (EIN 99-1129947). Stefanie Worth is CEO of Voices of Winged Warriors. We are currently preparing to apply for our 501(c)3 designation. 

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We Reign Sickle Cell Corporation

We Reign Sickle Cell Corporation is a 501 (c)(3) nonprofit organization established in February 2023 in Florida. We mainly focus on spreading public awareness of sickle cell disease and identifying the sickle cell population in rural areas. The organization is headed by Allison Morris, President and Founder. The mission of this organization is to increase awareness of sickle cell disease, provide a network for sickle cell clients, and develop a system of transitional services to assist adolescents in transitioning to adulthood.

 

The organization offers many significant services, including SCD navigator support groups for sickle cell clients and individual rap sessions with clients to provide educational and vocational training for each sickle cell client and promote comprehensive care. 

https://wereignscc.com

SCMA is looking to work with other Sickle Cell Advocacy groups because it will take tremendous funding than one organization can provide to change healthcare for Sickle Cell disease(SCD) patients all across the USA. So, we are asking the various SCD support groups and others to partner with us and sponsor the training of however many healthcare navigators they can afford to sponsor, each group according to their financial ability.
Once their trained healthcare navigators start helping patients in the community, all the credit belongs to whichever organization sponsored those particular navigators, and all the data we will collect regarding how many patients these navigators help, will be credited to those organizations.
So EACH organization gets to look good for the healthcare navigators they sponsored and the patients they help every year. We at SCMA simply help to train the healthcare navigators and mentor them over the years. 

We hope you join us in this effort to change healthcare for the Sickle Cell community, whether as a patient, an healthcare navigator or through your generous financial support. May you be blessed as you join us in doing some good. 

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