Contact
Contact
407-906-3019
Helpline
For emergency use only, call:
1-888-286-0078
1)Need an advocate?
If you are a patient, or a caregiver of a pre-teen, and you want a Sickle Cell advocate (also called a Healthcare Navigator), please fill out the form below. We will contact you and pair you with one. From below, please select “Patient (or Caregiver) Seeking SCD Navigator” so you can register.
2)Registering as a patient, but you’re otherwise stable?
You’re stable, and that’s great. Our active-patient registration also covers you, so you can register with us even if you don’t need any assistance right now. By joining, you’ll be eligible to participate in patient- and caregiver-focused events. From below, please select “Patient (or Caregiver) Seeking SCD Navigator so you can register. Once we contact you, you may decline meeting with us or pairing with a Navigator at that time.
Address
1317 Edgewater Dr,
Suite #5035
Orlando, FL
FL 32804
Hours of operation
Mon - Fri
9:00 am – 9:00 pm EST
Sat-Sun
12:00 pm – 7:00 pm EST
3)General Questions
If you would like to partner or collaborate with us, please connect with us at support@sicklecellmedicaladvocacy. Alternatively you may leave a message on the “Additional Qs” form below. It acts as an email and delivers your message directly to us.
4)Sickle Cell Healthcare Navigator Certification.”
If you are interested in the Sickle Cell Healthcare Navigator Certification course to become an SCD Healthcare Navigator, who helps SCD patients to receive better care in the ER and hospital, please start by filling out the forms below, selecting “register for Health Navigator". This will be for Spring of 2027.
(No courses in 2026!)