Recent Events

Congratulations to SCMA’s Medical Advocacy Training program graduates for becoming newly minted certified medical advocates! We appreciate your commitment to the Sickle Cell community and your desire to help advocate for a patient in crisis as they go to the hospital.
All the best on your journey!

A recording of the graduation is available at a suggested donation price of $25. Please contact support@sicklecellmedicaladvocacy.org

December 19 2022

It was an honor to receive the “Champion of Impact” award on behalf of the team at Sickle Cell Medical Advocacy Inc. at The Gift of Hope Celebration last night. Dr. Wanda Whitten-Shurney of the Sickle Cell Disease Association of America (SCDAA) was our keynote speaker. We received the award for “medical advocacy and education” of the Sickle Cell community. I would like to thank Carla Lewis of Kids Conquering Sickle Cell Disease Foundation, Inc. for this honor.
I received it on behalf of all of us, so here’s to the SCMA team!!!”

September 24 2022

It was a privilege to represent SCMA’s advocacy work and speak with the Orlando group of patients and caregivers at the Kids Conquering Sickle Cell Disease foundation
“Education and Empowerment” luncheon on September 24, 2022. Thank you to Mrs. Carla Lewis, their founder and CEO for such a great event!

On August 19th it was an honor and privilege to work with Uriel E Owens SCDA of the Midwest and represent on the patient panel round table as a physician and patient dealing with sickle cell disease and pain management issues. It was a delightful panel of representatives who showed the truth of sickle cell disease and the resilience of the Sickle Cell warrior.

August 19 2022

It was an honor for SCMA to collaborate with the Sickle Cell Community Consortium on their 9th Annual Warriors Convention to speak on several topics. Much gratitude to those behind the scenes who worked to make these two the highly attended sessions!

July 21-22 2022

June 10 2022

SCMA thanks Dr. Lanetta Bronté-Hall, MD, MPH, MSPH , the founder & CEO of Foundation for Sickle Cell Disease Research (FSCDR) for the invitation to speak at their 16th annual symposium as a guest speaker on the patient panel. The conversation centered around clinical trials and why it is important for patients with Sickle Cell disease to participate in these trials. We need more Sickle Cell disease specific medications being researched for our community. It was indeed a great Symposium!

SCMA’s physician Dr. Simone collaborated with Sickle Cell Foundation of Minnesota, by doing a PowerPoint presentation to our Sickle Cell Community. She showed how the type of IV fluids they are given when in a crisis makes a difference, and explained what the correct IV fluids in a Sickle Cell crisis would be.

June 28 2022

Celebrating world SickleCell day!

Our world SickleCell day event was

celebrated by inviting our national

and international organizations to

join the event. We welcomed

organizations from Ghana and

various parts of the Caribbean. We started by introducing the community to SCMA’s new doctor, Dr. Joanna Pascal who is also a caregiver to a toddler with Sickle Cell disease. Dr. Pascal is originally from Grenada. Our featured event was a presentation by Dr. Simone on how to self- advocate in the emergency room for urgent care when in a pain crisis.

June 19 2022

Tamika Moseley, public speaker and author of “Sickle Cell Natural Healing: A Mother's Journey” joins forces with Sickle Cell Medical Advocacy Inc. to bring Holistic Pain Management options for Sickle Cell disease March 20th 2022 at 4pm EST. This is one of the upcoming Patient Education for Prevention (PEP) programs being brought to you this spring by SCMA.

https://www.eventbrite.com/e/holistic-pain-management-for-sickle-cell-disease-tickets-288816898117?ref=eios