top of page

Recent Events

Congratulations to SCMA’s Medical Advocacy Training program graduates for becoming newly minted certified medical advocates! We appreciate your commitment to the Sickle Cell community and your desire to help advocate for a patient in crisis as they go to the hospital. 
All the best on your journey!

887bbf8a-26ae-4d1a-aed7-930fd4a5815a.JPG
35963c15-61e9-44ba-b4c1-7a6cf8e14edc.JPG
33c766de-8234-42d4-b77c-7186b86e9b83.JPG
76d91c87-1eea-496c-8d87-c7ddf247bbfb.JPG
551b00e4-23c4-44e4-8088-013cf4312657.JPG
a0224087-f908-4701-abf9-7c77c93a04ca.JPG
a1dfcb9a-f5d5-4fcf-b997-c5d70c1b7025.JPG
e266c061-f027-498c-b0c3-ca0e4ddd0738.JPG
140b3f54-e443-46a6-b545-025064260f76.JPG
9b5c9152-793d-4747-9b59-5d1d8b7cf15c.JPG
19258896-c4fe-4f00-a372-41b42b69636f.JPG
c6f13743-e6a0-40c5-9f74-9d1e0c707ca6.JPG
c690a88c-408f-4958-82c1-14a635618be5.JPG
d6f99a9c-5fb4-4330-8c98-9e22bbf8e9b4.JPG
8fb0b472-70d7-4950-8eb8-cbee469af98f.JPG
22f694f4-1530-4e34-9b5f-ce3480a20fb3.JPG
2035f68c-003a-48e5-bb7b-14b23ecf7c27.JPG
236c5c97-ba5f-4f4a-a09d-46e389ed543a.JPG
b51c066e-0432-46d1-9892-b25ec139ae72.JPG
8d025e73-63ca-4b75-8ea9-776409204240.JPG
31ecc5fa-73cd-4e10-94be-e4a2fbaa6055.JPG
c0e87f1a-58c4-47fc-9498-b0c3e4d7fb87.JPG
3a098ebb-fbae-48ba-bbbd-48e01bf85bb9.JPG
351c6f00-66fe-4a88-9651-50f0ca56a893.JPG
3f93deaa-c018-4d53-84b1-18de15837280.JPG

A recording of the graduation is available at a suggested donation price of $25. Please contact support@sicklecellmedicaladvocacy.org

December 19 2022

It was an honor to receive the “Champion of Impact” award on behalf of the team at Sickle Cell Medical Advocacy Inc. at The Gift of Hope Celebration last night. Dr. Wanda Whitten-Shurney of the Sickle Cell Disease Association of America (SCDAA) was our keynote speaker. We received the award for  “medical advocacy and education” of the Sickle Cell community. I would like to thank Carla Lewis of Kids Conquering Sickle Cell Disease Foundation, Inc. for this honor.
I received it on behalf of all of us, so here’s to the SCMA team!!!”

image_123927839.JPG
image_50433281.JPG
image_67222273.JPG
image_123927839 (1).JPG
image_50460673.JPG
image_67169025.JPG
image_6483441 (13).JPG
September 24 2022

It was a privilege to represent SCMA’s advocacy work and speak with the Orlando group of patients and caregivers at the Kids Conquering Sickle Cell Disease foundation
“Education and Empowerment” luncheon on September 24, 2022. Thank you to Mrs. Carla Lewis, their founder and CEO for such a great event!

IMG-5366.JPG
IMG-5365.JPG
IMG-5362.JPG
IMG-5338.jpg

On August 19th it was an honor and privilege to work with Uriel E Owens SCDA of the Midwest and represent on the patient panel round table as a physician and patient dealing with sickle cell disease and pain management issues. It was a delightful panel of representatives who showed the truth of sickle cell disease and the resilience of the Sickle Cell warrior.

IMG-5370.jpg
August 19 2022

It was an honor for SCMA to collaborate with the Sickle Cell Community Consortium on their 9th Annual Warriors Convention to speak on several topics. Much gratitude to those behind the scenes who worked to make these two the highly attended sessions!

image_6483441 (6).JPG
image_6483441 (7).JPG
July 21-22 2022
image_6487327 (2).JPG
image_6483441 (2)_edited.jpg
image_6483441 (1)_edited.jpg
image_6483441 (3).JPG
image_6483441.JPG
June 10 2022

SCMA thanks Dr. Lanetta Bronté-Hall, MD, MPH, MSPH , the founder & CEO of Foundation for Sickle Cell Disease Research (FSCDR) for the invitation to speak at their 16th annual symposium as a guest speaker on the patient panel. The conversation centered around clinical trials and why it is important for patients with Sickle Cell disease to participate in these trials. We need more Sickle Cell disease specific medications being researched for our community. It was indeed a great Symposium! 

SCMA’s physician Dr. Simone collaborated with  Sickle Cell Foundation of Minnesota, by doing a PowerPoint presentation to our Sickle Cell Community. She showed how the type of IV fluids they are given when in a crisis makes a difference, and explained what the correct IV fluids  in a Sickle Cell crisis would be.

June 28 2022
image_6483441 (4).JPG

Celebrating world SickleCell day!

Our world SickleCell day event was

celebrated by inviting our national

and international organizations to

join the event.  We welcomed

organizations from Ghana and

various parts of the Caribbean. We started by introducing the community to SCMA’s new doctor, Dr. Joanna Pascal who is also a caregiver to a toddler with Sickle Cell disease. Dr. Pascal is originally from Grenada. Our featured event was a presentation by Dr. Simone on how to self- advocate in the emergency room for urgent care when in a pain crisis.

June 19 2022
image_6483441 (5).JPG

Tamika Moseley, public speaker and author of “Sickle Cell Natural Healing: A Mother's Journey” joins forces with Sickle Cell Medical Advocacy Inc. to bring Holistic Pain Management options for Sickle Cell disease March 20th 2022 at 4pm EST. This is one of the upcoming Patient Education for Prevention (PEP) programs being brought to you this spring by SCMA.

https://www.eventbrite.com/e/holistic-pain-management-for-sickle-cell-disease-tickets-288816898117?ref=eios

Tamika_Moseley.JPG
March 20 2022

Interested on becoming a Medical Advocate?...

 

Please email us OR simply fill out a  “contact us” form located under the “contact “ tab to inquire about this class.

MAT_poster.JPG
Read More

To Caregivers & Sickle Cell Disease Patients...

Free nutritional counseling, mental health counseling & holistic pain management counseling services available...!

TLC_Invite.jpg
Read More

-To inquire about Dr. Simone Uwan for speaking events, please contact:

 

md@sicklecellmedicaladvocacy.org

Or call:

407-906-3019

TRANSFORMATIVE and QUALITY healthcare for Sickle Cell patients.
bottom of page