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Sickle Cell
Medical
Advocacy
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About SCD/SCT
Patient education
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About Sickle Cell Disease & Trait
SCD is the world's most common genetic blood disorder. Understanding it changes everything.
Why SCMA exists
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Three commitments that guide every call.
Our Mission
Our Vision
Our Objective
Sickle Cell Medical Advocacy Inc. empowers patients, caregivers, and community advocates with comprehensive education and advocacy training to improve healthcare outcomes for individuals with sickle cell disease.
Through education on national sickle cell management guidelines and one-on-one advocacy training, participants gain the skills to navigate timely medical intervention, leading to faster recovery and reduced hospital stays
Our vision is to optimize medical management, decreasing the incidence of end-organ damage
and increasing the quality of life and lifespan in sickle cell patients.
Our objective is to dismantle the barriers that obstruct effective ER and hospital treatments for those with sickle cell disease through a comprehensive virtual healthcare navigation center. We offer services such as medical advocacy, mental health support, community outreach, and educational courses for sickle cell patients.
Our commitment is to empower sickle cell patients with improved healthcare access and enhance their treatment outcomes in hospital settings.
DISEASE
An inherited blood disorder where red blood cells form a rigid sickle shape, blocking blood flow and causing pain crises, organ damage, and increased infection risk. About 100,000 people in the US live with SCD; 1 in 365 African American babies are born with it.
TRAIT
Research increasingly shows the trait can be symptomatic — causing patients to need medical care. SCMA extends its services to cover those with the trait who may need medical intervention.
U.S. STATISTICS
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Who is affected
100,000
People with SCD in the US
1 in 13
African American babies born with sickle trait
1 in 365
African American babies born with SCD
1 in 16,300
Latino babies born with SCD
GLOBAL REACH
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SCD affects millions worldwide
SCD affects millions with ancestral ties to sub-Saharan Africa, Central and South America, and the Caribbean. People living with SCD are also found in Saudi Arabia, India, and Mediterranean countries.
Sub-Saharan Africa
Central & South America
Caribbean
Saudi Arabia
India
Mediterranean