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The Sickle Cell Medical Advocacy (SCMA) stands as a 501(c)3 non-profit organization, initiated by
sickle cell patients and caregivers with a primary goal of dismantling the barriers that obstruct effective
emergency room (ER) and hospital treatment for patients with sickle cell disease (SCD). Founded in 2021
by Simone Uwan MD, a retired physician living with SCD and teaching authority in the SCD community,
SCMA is the only nonprofit to take a nationwide approach to sickle cell health care with curriculum-
based training and patient education. Our unique approach to direct healthcare navigation trains
volunteers nationwide and pairs them with SCD patients to improve patient healthcare outcomes in real
time. The organization has trained 60+ health navigators located across 21 states so far and has served
300+ SCD patients to date, with over 8,500 hours volunteered through our programs, courses, and support
groups in the last year alone.

Please see the “What We Do” section for a summary of our comprehensive services.